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View Full Version : Neck Ache, Eye Pressure And Watery Eyes



Tania B
20-07-09, 03:09 PM
Is neck-ache at the base of the skull, the feeling of pressure behind the eyes and watery eyes typically associated with MAV? Does anyone else have the same?



My neck feels very tight and sore especially in one area. My eyes keep watering and feel as though there is some pressure behind them. I'm finding it very hard to focus properly too. I've become clumsy and have difficulty not bumping into people and objects.



http://www.dizzytimes.com/public/style_emoticons/<#EMO_DIR#>/sad.gif

roseyrose
20-07-09, 03:20 PM
Hi Tania - I&#39;ve not been diagnosed with actual MAV, have got VN but since Jan have had headaches that have got increasingly worse. I normally get neck ache with them, or more a pain right at the base of the skull in the middle of my head & the pain is worse just right & left of the middle where the bones are. I often have watery eyes, they feel sore & over tired . At the moment it feels as if my eyes are drilling slowly into my head so I suppose the pressure doesn&#39;t feel as if it&#39;s behind them but there is pressure there.

Karre D
21-07-09, 08:02 AM
Hi Tania



I&#39;m sorry you&#39;re suffering. I would say neck ache is very common with MAV, I attended A & E on one migraine headache occassion, because the headache had lasted almost 3 days and I was suffering from facial paralysis as well as the usual symptoms (got to say it frightened the life out of me). The A & E doc said my muscles were in spasm. When my symptoms flare, I have visible swellings at the base of my skull (feels as though it&#39;s full of fluid) and at the top of my spine (which is usually the size of a golf ball and hard to the touch) and they both feel really bruised.



I also have eye pressure and they feel really strained. On waking, my left eye protrudes and is bloodshot and takes an hour or so to get back to normal. My vision is like you describe yours when I&#39;m leading up to a humdinger of a headache. In short, I walk around like a drunken hunchback of Notre Dame!



There&#39;s not much reassurance I can give you apart from saying the symptoms sound "normal" to me and very much like mine, I think it just helps to hear others get the same. I hope you get some relief soon.



Karrie x

Tania B
21-07-09, 09:46 AM
Than you for your replies Roseyrose and Karrie. I do find it reassuring that I am not alone in my symptoms and that they are not part of something new to tackle. I don&#39;t want to become a real hypochondriac. However the symptoms keep adding up don&#39;t they?



Your headaches, both of you, sound really nasty. I&#39;m fortunate that I don&#39;t really get the headaches you describe as such just a muzzy, dull background ache at times. I would say that my head feels too heavy for my neck to carry. Sometimes with the way I walk I imagine myself as Frankenstein&#39;s monster, with a bolt through my neck, stumbling around with heavy clumsy feet. What with Karrie&#39;s drunken Hunchback of Notre Dame, between us, I think we may have the whole gothic horror film scene covered!



I often do feel pressure across the bridge of my nose and sometimes have had what I used to describe as sinus headaches. I think I read somewhere that a migraine headache can be mistaken for sinus headaches.



My mother suffered sometimes with migraine headaches and used to disappear upstairs to bed for a couple of hours. I don&#39;t remember it happening very frequently but I do remember how she described them. She had the aura, sometimes tingling down one side and slurring speech. I get a form of the aura which is not pleasant. Do you? Is migraine in your family too?



Once again, thanks for replying. It really does help.



Tania

roseyrose
21-07-09, 12:23 PM
Hi Tania - My headaches are often very similar to what I&#39;ve thought of as sinus pain & one GP dismissed them as that combined with stress. He prescribed sudafed for the sinus pain but that just made the headaches worse. I started getting tingling & facial numbness when I started vrt with a physio concentrating on eye movements. When I went back to the doctors I saw a different gp, once I said about the tingling etc he put me on amitryptaline & has referred me to a headache clinic - I&#39;ve got my appointment tomorrow. Migraine runs in my mums family, she&#39;s had migraines for as long as I can remember, bad ones, has to lie in a dark room with sickness etc. I think there&#39;s only one member of her family that doesn&#39;t have migraines. I know what you mean about the symptoms adding up, I do feel like a hypochondriac as it seems every week there&#39;s another new symptom!

Tania B
21-07-09, 05:08 PM
Hi Tania - My headaches are often very similar to what I&#39;ve thought of as sinus pain & one GP dismissed them as that combined with stress. He prescribed sudafed for the sinus pain but that just made the headaches worse. I started getting tingling & facial numbness when I started vrt with a physio concentrating on eye movements. When I went back to the doctors I saw a different gp, once I said about the tingling etc he put me on amitryptaline & has referred me to a headache clinic - I&#39;ve got my appointment tomorrow. Migraine runs in my mums family, she&#39;s had migraines for as long as I can remember, bad ones, has to lie in a dark room with sickness etc. I think there&#39;s only one member of her family that doesn&#39;t have migraines. I know what you mean about the symptoms adding up, I do feel like a hypochondriac as it seems every week there&#39;s another new symptom!





Roseyrose,



Good luck at the headache clinic. I do hope it goes well for you. The VRT eye movement exercies I do are the hardest for me too. With regard to the family link, it sounds as though it may be a common one for migraine.



Tania

Karre D
23-07-09, 09:40 AM
Hi Tania & Roseyrose



Tania - my Mum did suffer from migraines when I was small, but she had a hysterectomy (is that how you spell it??!!) when she was 29, she does get head pain still, but she would describe it as a short, sharp stabbing pain in her head lasting seconds with no ill effects afterwards. I&#39;m convinced the old hormones have a big part to play in all this. For 2 years prior to my MAV starting, I was having a heavy period every 2 weeks, this lasted for 18 months - I went for a scan and apparently there was nothing obvious wrong so the Doc put me on Cerrazette to level out my hormones. Great! No periods at all for 6 months - then I started with this horrible condition on the very same day I came on a period (coincidence??). I stopped taking the pill in September 08 and have been having normal periods since. Does make you wonder doesn&#39;t it?



Roseyrose - Hope all went well at the Headache Clinic - does Amitryp suit you? I&#39;ve tried them at 10 mg and put on a stone in 8 weeks. I&#39;m back on propranolol at the moment, more weight gain and I&#39;m losing my hair! So now I&#39;m a fat, bald, drunken quasimodo http://www.dizzytimes.com/public/style_emoticons/default/laugh.gif - hammer house of horror here we come! I&#39;ve got an appt at the end of August, can you tell me what I can expect? By the way, initially all my symptoms were put down to stress when I went to GP.



Hope you&#39;re both keeping as well as can be expected with this horrible condition.



Karrie xx

roseyrose
23-07-09, 10:04 AM
Hi Karrie - I have had slight weight gain in the last month but never connected it with the amitryptiline, bad news for me if it is that as I&#39;m to increase the dose even more. On 10mg I was very tired but after a few weeks not too bad, on 20mgs just felt the same tiredness as before but is taking longer to get used to it. I was diagnosed with migraine by the neurologist yesterday, as I&#39;ve got asthma I can&#39;t have any beta blockers so my only option apparently is to increase the amitryptiline. He classed 20mg as a low dose & I&#39;m to increase it by 10mg a month. At this rate I&#39;ll be the size of a house but hey at least I&#39;ve got an excuse!

He says my vrt is aggravating my migraines & suggested when I was finished with my vrt my headaches would improve, but as far as I&#39;m concerned the headaches are stopping the progress of the vrt so it&#39;s a catch 22. I suppose if the migraines are under control through meds then the vrt may work more & then after can reduce the meds. At the clinic I was given quite a few questionnaires to fill in regarding my headaches, frequency, pettern etc. I&#39;d been keeping a note of them as it&#39;s the only way I&#39;d remember with my dizzy brain! Still it was hard to answer some of the questions, for example - how many days over the last 3 months has your activity been reduced by a headache. It was the headaches & not the dizziness they were interested in & it&#39;s hard to separate them sometimes. Had to describe the sort of pain, any other symptoms, light sensitivity, tingling etc. Did a lot of basic balance tests & eyes etc. I don&#39;t need to be seen again my gp can deal with it from now. I suppose it&#39;s good that more nasties have been ruled out but no magic cure, if only!

Karre D
24-07-09, 07:28 AM
Hiya Roseyrose



That&#39;s good news your GP can deal with your condition in future and that you&#39;re mind has been put at rest - no more waiting about in hospitals has got to be a bonus. Can I ask who referred you for VRT? None of the specialists I&#39;ve seen have ever mentioned VRT to me and just sidetracked me when I asked.



I see what you mean about the questionnaire, I get migraine headaches approx every 2-3 weeks but the head pressure is almost always there, the dizziness is brought on by busy environments and shops but the fatigue and weakness is the worst symptom for me - what hope have we got if the "specialists" can&#39;t even understand that MAV doesn&#39;t mean headache! (Rant over!)



Hopefully, you&#39;ll get used to the Amitryp soon, what will your maximum dose be? Hope you&#39;re well.



Karrie x

roseyrose
24-07-09, 09:02 AM
Hi Karrie - I think he said the dose could go up in 10mg steps to 40 or 50 mgs a day. The thought of taking that much is a bit scary I suppose though you get used to it sleepyness wise but the weight gain at that dose - I don&#39;t want to think about! My symptoms do seem to be worse on 20mg, at 10mgs dizzy wise & visually I was loads better but still getting the headaches so upped to 20mgs - on this dose still headaches but seem to be worse balance & vision worse too. Consultant said it&#39;s sometimes the case that it can make your symptoms worse as you increase the dose but shows it may need to be upped a lot more.

I was diagnosed with VN after balance testing, my original problems were dizziness, nausea & visual vertigo symptoms. I got given a vrt sheet by ENT, after 6 months ENT wanted to discharge me as there was no more they could do, balance wise I was loads better but visually still having huge problems. Eventually I managed to get them to refer me to a physio for vrt before they discharged me. After waiting so many months for vrt with a physio I found it brought on all the migraine symptoms - great!

I&#39;m so glad that I won&#39;t need any more appointments but isn&#39;t it typical, the first consultant I&#39;d met ever that was personable, witty, down to earth & generally a normal person not a stuck up idiot with a god complex & I won&#39;t need to see him again!

Karre D
24-07-09, 11:47 AM
Hi Roseyrose



I think that&#39;s called sod&#39;s law! I thought it was just me bringing out the worse in these consultants, obviously not - the neuro I&#39;m seeing at the moment is vile, he stands at a lectern looking down on you while firing questions and rolling his eyes - I feel like I&#39;m back in front of the Headmaster at school, which makes me flustered and I can&#39;t even follow my notes properly - he&#39;s a real condescending piece of work!



I&#39;m sure Tom has said something about VRT aggravating MAV symptoms, I think he recommends sorting out the MAV then going onto VRT? Not sure though, maybe I&#39;m mistaken - perhaps you could ask him.



Good luck with your meds increase - I&#39;m currently on propranolol started at 80mg and upped to 240mg, that really knocked me about I can tell you. Stayed at 240mg for the recommended 6 weeks and dropped down to 160mg, seem to be better at this dose but far from recovered. Never mind eh, these things are sent to try us. Let me know how you&#39;re doing with the meds - good luck!



Karrie x